Stoma + Fistula Progression.

This page is for photographs of my stoma and fistulas to help keep track of changes with them and to show others what I have/had. They are not for the faint hearted! ( you have been warned)

Please do not be offended by these photos, they are what I live with everyday and are not going to hurt you. If you think it’s gross and you would rather die than have a stoma (which believe it or not I have heard people say) then I seriously think you need to sort your priorities out! Despite the cons that come with having a stoma and/or fistulas, for many people they are the thing that has stopped you dying! I’m proud to be a person with a stoma. I may hide my bag under my clothes but that doesn’t mean I’m not proud to have it.

PLEASE NOTE: If you are going to have a stoma or having bowel surgery or anything like that in the future or just had it – that doesn’t mean you’re going to end up like I have! I am a rare case! Most people who have surgery to form stomas are straight forward – problem solved cases. Please don’t worry thinking you’re going to have the same problems as me! You  might get a fistula, people do! But I doubt you will get surgical problems like I have. So please don’t panic/freak out! If you have questions about your surgery, talk to your surgeon, colorectal nurse, stoma nurse, GP, a support group or you can even talk to me if you want. I’m always here to help! 

Well, let’s start at the beginning!

[Please note, most photographs are taken during bag/dressing changes so some photos will be a bit more yucky looking than the rest!]

[Hover your mouse over the photo for the month/year it was taken]

Well, I would, but I don’t have any photos of my original stoma (2008-2009) anymore! I must of deleted them.

In 2010 I had three abdominal fistulas.

These fistulas were contained within 3 bags, and the temporary fistula (next to my belly button) was contained with a dressing until it healed up. I had these fistulas from November 2009 until December 2010.

Photo’s from my BIG surgery in December 2010.

First:

This is my stapled up scar from the first operation I had in Dec 2010. I had an ileostomy also, but it wasn’t included in the photo.

Next: After being rushed back into surgery, 10 days after the first operation, three times (i think) for more surgery and wash outs, I was left with an high output ileostomy (due to there only being one metre between my stomach and the stoma end) and 5 abdominal drains.

Without the drains in:

Home, from 10 months in hospital, for good!

2012:

check out dem hips yo. OCT 2012.
March 2014. Super weird angle shot but it's labelled for you.

March 2014. Super weird angle shot but it’s labelled for you.

 

 

 

 

 

 

 

 

You can still wear cute undies with bags okay? :)

You can still wear cute undies with bags okay? :)

 

 

So there you have all of the yucky shots of my fistula progression over the past three/four years.

12 thoughts on “Stoma + Fistula Progression.

  1. You are such a brave young woman. No one should have to bear the amount of pain you have had and continue to deal with. Your positivity shines through. Thank you for sharing your journey. Xx

  2. Thank you for posting all of these pictures. I was wondering what an abdominal fistula looked like because I know someone who has had one. I currently have a pouch-vaginal fistula…so everything is inside and I have no idea what it looks like aside from it being like a tunnel between the two organs. I’ve only had it for a couple of months, because it developed right after my surgery to get an s-pouch and diverting loop ileostomy this April. You have such a great take on life!!! I am so happy to still be alive too! A bag really is not that bad at all :). Seeing what you have gone through makes me stronger, because I know I can get through it just like you! So thank you!
    -Faith
    theflowrylife.wordpress.com

    • Hi Faith,

      Thanks for your comment, apologies for the late reply!
      Whenever I’m at the hospital and it’s a new staff member or Doctor etc meeting me for the first time I’m sure they ask to look at my abdomen just to see what it all looks like for curiosity not for a real medical reason now! haha
      Stay strong and keep your faith up! Hoping everything improves for you soon,
      BedEleven :)

  3. Hey! I just came across your blog there now on Tumblr and already I know i will be checking it everyday! Its amazing to see what you have been through, you really are such an inspiration and such a good writer too! I was diagnosed with severe ulcerative colitis a few months ago and i’ve found it really difficult at times, especially the past few weeks. But just reading through your blog really helps so thanks for posting. Hope your keeping well and I look forward to reading your future posts! x

    • Thanks so much Sara, apologies for the super duper late reply! Sorry to hear about your UC diagnosis, I hope you’re doing well and improving at the moment sweetie! Much love and healing vibes! xo

  4. Hello, 4 years ago I was confined in a hospital for almost a year from intestinal perforation. The feces are all over my system poisoning me and I almost died. They put tubes for the abscess leak at my right abdomen and a colostomy bag at my left abdomen. I still remember the morphine tube that injects in my body every 7 minutes. Eventually, they discharged me and told em to eat a lot of food such as burgers and fats to build up the guts, fats and flesh supporting my intestines. After another 2 years they called me back to reversed my intestines, and now I’m able to crap through my anal. Until now, I got all this scars and it’s not really friendly looking. It messed my head a little bit and got a little addicted to morphine. Thank god for death metal music it saved my life going through the process.

    I am sure, they’ll be able to reverse that but you need to gain weight and try to look for other gastro surgeons for second opinions.

    I’m from New York US.

    You take care of yourself \m/

  5. Hi: my daughter is in the hospital as we speak getting a fistula repair, I’m so thankful for these pictures and so I can understand all about this surgery and know what she has been going through.im praying she will come through this ok ,she has been depressed for a. While now.always tired,headaches no desire for company. GOD BLESS YOU ALL . Brave Women Keep your spirits up.

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